On waiting for remission…

Waiting sucks

Waiting sucks. Whether waiting for a bus; your turn in a public restroom; your birthday present; your dessert in a restaurant; or even waiting for yourself to finally fall sleep. Waiting sucks when you did well, when you didn’t do well, or when you didn’t do anything at all.

Waiting is seen essentially as a waste of time. It is the place between two radically different states. Waiting is ambiguous, monotone, and yet interesting,..

The interesting stuff lies between where you were before needing to wait and where you will be after waiting is over. It is like a twilight zone, where we discover things we didn’t know before…

How can waiting be active ?

If waiting were passive, life would be so dull. We wait all life long for things to happen: some of them we want and some we are very keen to avoid. We learn to wait as soon as we are born. We wait to be fed, cleaned and cuddled. We even wait to die…

Waiting changes as we grow. We discover sooner or later that our needs and wants are not instantly met by the world.

Frustration builds up as we face negative experiences where waiting was not just long, but led to an undesirable outcome. We resort to prayer, to superstition, to therapy and sometimes we end up in depression; waiting.

Waiting and expectation go hand in hand. The higher the stakes, the higher is the expectation associated with waiting. Waiting for a bus is unlike waiting for remission. The first is bound to happen (the bus will eventually come no matter how late). Yet, some other waiting is tricky. What happens when you wait for remission? For better health? For a better future? For a full life?

What to do while waiting other than waiting? What can be done before waiting to make waiting more bearable? What can be done to make waiting matter, so that it makes sense?

How can we wait for remission?

I have learned so far that waiting for remission boils down to two main factors. The first, is wanting to get better. (For the sake of simplifying things, we will assume that we actually and truly want to get better). Interestingly, the second factor is accepting not getting better.

It was so confusing to me. The more I wanted to get better, the more frustrated I became. After being frustrated waiting, I gave up hope, which definitely didn’t make waiting any easier or quicker.

Waiting is a skill that sooner or later we better learn to master, especially if we are waiting for something of such great value such as remission.

We could complain or wait in silence, while we are shattered internally with each second bringing us closer to the end of a bottomless void. We can swim in the darkness and sink deeper as the pain never lessens. This would not mean that we are accepting this reality, but rather that we give up. We give up hope, we can’t see any other possible scenario. This is it. And if this is the case, remission will never happen.

Yet, if we surrender, maybe things could change. We surrender to and accept the pain, the guilt, the remorse, the shame, the pity, the ugliness of it all. We accept the status quo while knowing that nothing stays the same forever. We need to know this in on our bones. Like seriously know that nothing ever stays the same forever. It is not over, until it is over. Repeat it, feel it, believe it, know it.

We should never give up hoping to get better. I always say, if I feel better for a minute now, next time I will feel better for two minutes, then three, then an hour and so on. Yes I will get worse, but then I will get better again. Hope cannot be taken out of a person unless they decide to give up. One single minute lived without pain, means more minutes will come. Just wait.

Bottom line

Wait actively. Listen to your soul and body. Don’t undermine your thoughts. You are still creative even if life is putting you down. You still have a mind, even if you are drugged down by the doctors. You know what it is that is really wrong with you. Better still, you surely know what is really good with you. Yes, there is plenty. You are just looking the other way.

Wait while searching. Dig deep, and take it step by step. Work on everything you know how to solve, and leave the rest to time. Work it like a puzzle. Your life is a giant Lego. Do the easy parts first. No one will fix you. You need to fix yourself. There is no perfect scenario. Life is not black or white. Accept being in the grey zone.

Make your bed, shower and eat real food. You can do that. Do your laundry and get a hair cut. Get back to this thing you used to like before. Was it writing , painting, composing, gardening? Pick up something you never had the chance to do before, but always wanted to learn or do. Make waiting count.

Don’t be the same person once waiting is over. You would have lost double the time. Either way you have nothing to lose.

The goal is to rediscover yourself beyond your illness. There is an “I” behind the illness. You are not the illness. Who is it who is waiting for remission? What will s/he do if they were not sick this very second? What would have happened if they hadn’t fallen sick? What is this bloody and agonising state trying to tell me?

Don’t wait for an answer. You already know it.

Think. Cry. Fall. Shout. Rise. Create. Pray. Write. Paint. Run. Sing. Build. Forgive. Love. HEAL

Make every second waiting count.

The importance holistic of self-care

Tear and wear as we approach our mid-thirties and forties not only gets to our bodies but also to our minds. 

Life has such a demanding rapid pace. It leaves us a few moments for reflection and decluttering. We rarely put ourselves first; we say, later, just let me finish one more thing first. We silence the rising alarm saying “I am tired” until we become unhappy and eventually psychically and psychologically unwell.

Small droplets form oceans. 

These oceans form because of events that are out of our control. Life is not easy. Yet, we are at fault too. We rarelystop, assess, and reconsider our strategies before it is too late. We ignore our intuition and end up caught in vicious circles leading to more physical and mental pain. 

I learned throughout my journey that in order to break free from negativity, it is imperative to decide to be self-critical and assume responsibility. One has to want to be genuinely happy, or at least try to. Being passive brings us no good. 

The wish is the beginning of the realization of the dream. 

Quite often, in conversations with people, I see how they are absorbed by hopelessness. They simply cannot see any different outcome. Circumstances seem like a life sentence. They don’t put themselves first and gradually become someone else. 

We carry too much on our shoulders, and we either give up or wait for things to miraculously change. 

We forget that our mental health affects our physical health and vice versa.

When we become emotionally unbalanced, we develop all sorts of illnesses. Our immunity weakens. Look around you. Chronic back pain, migraines, indigestion, weight problems, fertility issues… Dig deeper. You will probablyfind a lot of emotional turmoil too like sadness, remorse, fear, anger, and guilt. Later these develop into anxiety, depression, PTSD, and eating disorders. 

We might not be able to avoid everything. But there is always something we could work on: caring for ourselves. 

We cannot take care of others if we don’t take care of ourselves. 

Remember that a bad day will always end. Small real changes go a long way. Recognize the importance of yourmental well-being and know that some choices though hard to make are for your best.  It is never too late to be your first priority. 

Our mental and physical well-being are closely related. When we feel overwhelmed by physical pains, we should stop and think: is my body trying to tell me something? Is there a psychological reason for my physical suffering? Often, when we dig deeper, we discover that many illnesses are due to feelings of guilt, fear, and anxiety. Take a breath and reconsider.  As Jalāl al-Dīn Rūmī said, “What you seek is seeking you.”

 “What you seek is seeking you.” Jalāl al-Dīn Rūmī

Call for interviews

As part of a bigger life project, I am conducting (anonymous) interviews on how to live/cope with bipolar disorder. Send me a message here or through my Facebook page if you are interested in participating.

Bless

https://m.facebook.com/happilydepressedblog/

Solace, where are you?

I would like to shed my skin like a snake…

I would like to change colors like a chameleon…

I know that personal growth is not always linear.

I know also that sometimes you keep on suffering until you learn the lesson.

Things are more bearable during the day. Yet, when the sun sets, and as the sky becomes darker, there is little left to be done. The few chores of the day end one by one.

I sneak back to my corner in bed. I hold my phone and do nonsense. Minute after minute, tic toc. It is past midnight already. I count the hours I have left in bed, and dread facing the next morning. I will myself to sleep but know to well that this is not how it works.

Someone else got into the control center in my head and took over. I am equally lost between trying to fight and surrendering. They are the same.

I’d do anything if I could. Like walking on shifting sand I lie on this side then on that side seeking comfort.

I finally fall asleep but my dreams are no solace. Of course they are vivid. I stopped trying to know what is true and what is not. They are as real as it gets, and also as fake as it gets.

I usually fixate on things in my dreams. Small details, they keep on coming back. I wake up without any memory of what happened. Just a feeling of weirdness and abnormality. Too much brain activity or too little. All the same.

I find small feet cuddling next to mine. They are seeking comfort and safety in me. In me…

I wake up to the sound of the alarm and hit snooze. I wish I could escape from the responsibility of being me.

I wish I could let go.

I worry about my family and how they will react – again. Pity, love, empathy, boredom, anger, what again will they feel.

I can see my temporary paralysis turning beautifully into a handicap. Will I need to be taken care of again? Till when I wonder… Will I ever be an adult?

I don’t know what to do with every single second of my day. I listen to this song then forward to another. I watch this show and then another. I go out for a smoke then decide it is too cold. I want cookies and cheese at the same time. What the hell is going on.

You know I wish I had a timeshare at a mental clinic. How cool would that be? Hello yes, this is client 44087. I am calling for room 13. Yes, is it time already. Is it empty today? Sure, like last time yes. I would like to start with the locked up package first. And I insist, don’t let me out even if I beg you too. That’s it then. See you later. Oh yes, I know the drill. No sharp objects of belts. Thank you.

Perfect customer service.

A few weeks after, my skin would have shed. Yes I am a reptile after all. Why? Oh am also a chameleon and I change colors all the time. Only difference is this is not for adaptation like reptiles. It is a malfunction, a mutation if you prefer.

At the end of the day, survival is for the fittest…

TBC

Recharging

I was reluctant to fly back home. I was worried about meeting family and friends.

I didn’t want to have to deal with pity. I didn’t want to answer questions. I didn’t want to remember who I was before I got sick, or know who I am now.

It was not easy in the beginning. I broke down because I was so ashamed of what had become. It was a feeling beyond me. I felt my failure and forgot all the progress I had made.

I was so tempted to end it all. I held on to the thought of how I would disappoint my loved ones if I do.

I shrank into a ball in bed, fighting my demons. My family and friends would come in one at a time to try and talk to me. I didn’t have words to say. I wanted to shut off the world. I hid behind my blankets to avoid seeing them- seeing me like this.

I asked for medication, I couldn’t do without. I got some tranquilizers, a benzodiazepine. I popped a few – nothing dangerous. I had to numb the pain. I wanted to get out on the other side – the good side.

I asked for an antidepressant. I am away from my doctor and didn’t want to call her. No energy to explain anything to anyone. I decided to take Prozac 20 mg as a preventive dose for further attacks. Just the thought of another one was enough to kill me.

As these things take time, not surprisingly I got another attack a week or so after. A few days before, I had started to feel the ups of hypomania; rapid thoughts, loss of sleep, increased self confidence. It was mild and honestly I enjoyed it. What a nice break from depression… but I worried about the crash after. The higher you go, the lower you will get.

One day shortly after I felt paralyzed when sitting on a small cliff by the beach a few meters away from my family.

I was trying to relax. It hit me as I was looking at the waves and the horizon. I was in harmony with the scenery and little by little I had to lie down. I could not sit anymore. So I did, and thought I should relax some more. A horrible fear of falling hit me. I couldn’t stand up, I couldn’t move a muscle, I couldn’t talk. I waited for it to pass, I do not know for how long.

My daughter saw me as she was swimming and I managed to wave to her. I asked her when she came up to tell my husband to come to me. He shielded me as I crawled away from the cliff when everything was swirling around me. I don’t know why this happened. I just hope it will be my last attack.

I will check in with my doctor once I am back about the drugs am taking.

Yet, despite all this, I am proud of this trip. I am proud I was able to break this wall of fear and to accept love and empathy.

I am proud of being loved and cared for. I am proud of receiving all these hugs and all this care. I still feel vulnerable and worry of breaking- of course there is no magic cure. But somehow I know the worst is over.

There are residues for sure. Yet for those who might have similar stories, reach out, find those who care for you. You might not want to, you might fear what they will say, you might worry about how they will see you… Don’t.

As much as mental illness is mysterious, as much as love is.

Love has a healing power, especially when it is unconditional. Don’t worry about facing the world. I was swept off my feet with care – literally. I had forgotten the power of living “in” a society versus the isolation I face when in Paris.

As much as I didn’t want to go on holidays because when depressed you couldn’t care less, as much as I knew I had to. I wanted to do that for my husband and for my children. They got so worn out that past year with so much pressure- mostly from me.

I put one foot in front of the other and did it. I was challenged to sit by the beach! Imagine that… I was challenged to see my children have ice cream! It was difficult to let go and enjoy islands and beaches and hotels and swimming pools… yes believe me when down no one cares about all that.

Yet magically the change of scenery worked. One at a time like a flower opening its petals, the family started to relax. It was probably contagious. I started to enjoy things instead of being lethargic. It took time, but it happened.

I cannot stress enough the importance of holidays. Needless to say it can be as simple as going to the park and enjoying the view, no need to travel miles to do that. I will personally try and keep this concept of having a break in our family routine. I urge you to do the same.

I will check in more frequently, and I will try to talk about this journey of mine, which I hope will end in recovery.

TBC

Bless