Today I had a routine FaceTime appointment with my psychiatrist. I wasn’t expecting much. We were just going to discuss the usual.
Yet, the first thing he told me
was “I read your blog”.
I was taken back for so many reasons. I had no idea he would have such interest in his patients, or have the time really.
What is interesting is that I had written my last entry on how I am suffering from the side effects of the meds I am taking, especially how I have lost hope, and how I feel disabled mostly because of the antipsychotic quetiapine of which I take a significant dose. Although I had shared this with him before, reading my words seemed to have had a different impact on him I would discover.
Yes. My doctor told me something I would have never ever have imagined any medical practitioner to ever say. He told me I have failed to treat you.
I could not believe what I just heard. First of all we are far from being done. I am still being treated. And I am a thousand times better my dear doctor than the first time I saw you. I cannot even find words to describe the state I was in when I first talked to you and you said yes I will take you as my patient. I could barely speak, yet you were able to translate my pain and understood me.
Today my doctor showed me how he truly listens to his patients. I had talked to him over and over again about reducing the dose of my antipsychotic. He had refused categorically on many different occasions and told me if I did I would relapse. He told me I had to bare the side effects and be patient. He was extremely worried about me.
Today however, he told me that he thought long and hard about my blog piece and decided to change the treatment plan.
He decided to change it to accommodate to my needs and because he had already increased during the past weeks my levothyroxine. [My treatment is based on three pillars: levothyroxine, quetiapine, and rTMS]. I had also a few sessions of rTMS as a back up before this new treatment plan. He also told me that if I don’t respond well to reducing the quetiapine, he would shift me to another antipsychotic. This was all I needed to hear. Hope is the most powerful medicine of all.
I am sharing this story today because it is really a breakthrough on so many levels. I rarely hear of anyone admitting or alluding that they are wrong or even questioning themselves really- especially if they have any kind of authority over you. Two, who has the time to read or listen or care about their patient outside of the 15 minute appointment slot they have? Who cares what they feel, like or dislike? I have seen my share of psychiatrists and usually when I start slightly feeling uncomfortable it means that the relationship is going south and the end is near my friend.
I have all the respect and admiration to you Dr Andy Zamar, a great man, extremely bright and sensitive.
Mind you this is just the top to the iceberg. My admiration for this great doctor has no limit.
I only hope that he has the opportunity to train other fellow psychiatrists.
Like many days, I was thinking today long and hard about mental illness. How it infiltrates the body and gets deep into it before you even know what hits you.
You wake up one day and you don’t feel fine. You probably ignore it. How long does it take to develop a mental illness? A few months? A few years? Extenuating circumstances? What do you think?
I was obsessed, trying hard to search in my memory looking for the one moment where I became bipolar. Was it a moment to start with?
I recall anxiety, difficulty coping with everyday demands, depression, but I don’t recall mood swings. I also don’t recall a moment or an incident.
Mental illness is not a common cold. It creeped on me a little by little until I was totally submerged and couldn’t breathe. Only then did I know I was ill. I did not have the tools to detect it earlier. How about you?
This is why recovery is difficult. The longer the illness before detection and treatment (whatever the sort- especially if they screw you up) the longer the road to wellness.
Now am better. At least I know what is wrong with me. I am taking meds that work, albeit the fact that they do have side effects. There is no drug in this world that has no side effect.
My thyroid is inactive. So I take a lot and I mean A LOT of levothyroxine without much trouble. My main problem is Quetiapine of which I take 700 mg. I have gained so much weight on it and can’t lose it. It makes me lethargic, slow, drowsy, and I could sleep on it 14 hours plus naps minimum.
Yes I don’t have mood swings. Yes I am not anxious. Yes I am not depressed. Yes I am not hypomanic. But I have no initiative, my IQ is probably half what it was before, I am just plain yoghurt.
Yes I know all them drugs alienate you. But this one is so subtle. Or maybe it is the high dose that is making me unaware of how different I have become.
You know I just want to be me. I haven’t been me since 2016 when I was 36 and now am 39 and am still this other person I don’t know.
Do you feel the same? Are you on Quetiapine? Are you suffering from its side effects like me? Are you thinking of tapering off? Are you scared? Did you do it? Is the grass greener on the other side? Your experience is highly appreciated here from a fellow survivor to another
So I went all the way to London. I am from Egypt you see, I had to pay good money for a visa, and lots more for accommodation and living expenses. One hefty sterling pound costs 23 Egyptian pounds. You get the picture.
Any-who. We travelled, out of pocket. We did everything by the book. We stayed in the nicer areas. By we I mean my husband and I, and later my sweet father. We ate out, he took me shopping. He transferred money to me weekly even though he was already paying for most of the stuff.
He isn’t a millionaire. He isn’t a business man. He is just a loving father.
Twenty five days we stayed in London. Day in day out. My husband visited every single second he had. He took me out even to the west end.
I cried in their arms and laughed some more.
I was not prepared however for what the doctor told me one fine morning.
He told me Nour you have to go home. I didn’t comprehend. What home? Like the place we are renting out here in London? No? Home as in Cairo? As in the Middle East, pyramids and all? Why!! I am following your words by the book. Doctor Zamar your words are my command like literally.
Why summon me and tell me this?
It figures the bloody Prozac is giving me horrible withdrawal symptoms. He can’t treat me with them taking place. It is nothing personal he said but rTMS won’t be efficient. Nothing would work.
His plan was to fly me home and give me back Prozac and instead of weaning me off cold turkey; to tapper it off gradually.
Trivia: do you know that they don’t sell Prozac in smaller doses than 20 mg in many countries?
Guys, people of the pharmaceutical world stop lobbying against recreational drugs and kindly start putting your **it together with psychotropics.
An Arabic word comes to mind to describe the situation “Haram”; it roughly translates to “god forbidden”.
God forbids this bullshit companies are selling to us the millions of us this shit as pain relief…
God forbids you to prescribe us shit that will literally make us want to end our lives
God forbids you from making zillions hurting us and also making us dependent on you with every cell of our body.
We don’t need strong will to quit the poison you are selling us, we need a miracle.
I was willing to undergo Electric Chock Therapy ECT- which would basically erase what is left of my poor memory- just to get rid of the effect of the antidepressant in my body. That my friend is like asking me to deep fry my hand to get rid of a mole. It is that illogical. But I was willing to; cross my heart. Doctor bless him said it would be useless.
So now after quitting dear Prozac – the sweet antidepressant that is almost given over the counter – and I swear to god given to “normal” people who just want to lose weight; I am back to square one. I am taking it again. And will reduce the dose every 10 days.
I can’t give you more feedback about my new treatment as it came to a halt.
But for the love of god, for the love of Jesus, of Moses, Mohamed, and Buddha; NEVER take antidepressants if you might be suffering from a mood spectrum disorder.
3:15 Am, four Xanax later, one hour on SoundCloud, about 15 cigarettes, two herbal teas, some half pack of almond thins, an Instagram and a blog post published, and as sleepless as a toddler who just won’t nap.
I wake up nightly between 2 and 4 AM. It is a killer, but it is the period I feel the most creative- unstable but creative.
I can almost smell coffee, its rich and dark brewing aroma inviting me to take a cup. Just a sip. I can also see this gin tonic fresh and calling my name. I don’t want to eat, I want to binge drink! Isn’t that a word ? It is now.
I cannot have coffee or gin as a matter of fact. Doctor’s orders. No stimulation. None. No sports. Mot even hot yogaZ Not that I was your athlete or alcoholic. But still, breaking a sweat, sipping a nice drink…
If I had hold of a car now, if I knew how to drive on the “wrong side of the road” here in London, I would have gone for a cruise. The type of ride you have when you are what 19? Windows rolled down, music loud, singing along, no care in this world.
But am in my pjs, sneaking out in the cold to smoke yo my cigarette with my yogi tea and slippers with my toes freezing like a good girl.
No make up tonight. No tight dress and high heels; first no freakin tight dress would fit now and no heels in the suitcase.
But what is a woman without day dreaming? I have lipstick. I can do lipstick at 3 am or full make up if I want to.
But now the ride is coming to an end. SoundCloud is asking me “how deep is your love?” And am like you have no idea how deep is my love. My eyes are opened and I have devotion and it is bigger than the ocean.
I am making sense, don’t give me this look. Am in Ibiza but in primrose hill and that is totally fine.
Am managing my hypomania which was just suicidal ideation about 5 hours ago. Screw that, I want to be by the beach. Close my eyes, walk on the sand. I am in control of my emotions or not. I can run or swear. Heart rate is my affair. I stimulate and get stimulated as much as I need or wish or both.
Honestly. This is my first hypomanic post. Raw, unedited by my subconscious who wants me to look wise and smart. I just want to party… was it all a dream ? Back to my herbal tea
As part of a bigger life project, I am conducting (anonymous) interviews on how to live/cope with bipolar disorder. Send me a message here or through my Facebook page if you are interested in participating.
She told me that hormonal changes in female bipolar patients tend to send them over the moon sometimes. So what I am going through is not surprising. It is not a hormonal problem per se, it is just a confirmation that I have a mood disorder.
I asked if there is any biomarker that would tell us if I need a hormonal treatment to fix my mood. She said that there is currently no information on this. Surprise? Not really. So the only marker hormones wise is that of the thyroid gland functions. My numbers are not perfect, but not alarmingly different to cause such an imbalance.
My session was important despite the “negative” results. I now know that I need to make a big decision.
My doctor asked me about whether stopping lithium was due to hypomania and I said it was not. I would do this over and over again. The changes, the personality changes that most psychotropics cause me are just unbearable- to me. Again, this is such a personal matter that it would be straight stupid to advise anyone to quit or not. I am not preaching anything. I am just sharing my own journey, which might or might not be similar to yours. What is sure though, you might have gone through similarly difficult choices to make.
We agreed that my life as it is now is not fulfilling. The unpredictability of my attacks renders my illness a disability to me and to those around me. We are unable to plan anything. I struggle to be an adult, an independent person who requires little or no maintenance. I struggle to be there for my children as a full time mother. Career? What is that sir! Sometimes having a shower is already a challenge to me.
Having said that, my worst fear is hurting those around me. Till when can they deal with my unpredictability.
Till when will my husband take days off work, or leave the house with a feeling of apprehension not knowing if he will find me home when he gets back.
Till when will I have my father leave everything and stick around to be here just in case I cannot deal with the children. Till when will he hop on and off plans to come to an emergency situation beyond his or my comprehension? Till when?
So fact one; we know this cannot go on.
Fact two; there is no clear solution.
My dear doctor whom I respect so much suggested that I add a new psychotropic to my daily dose of Prozac.
You see I don’t have a conscientious objection against drugs. No, I don’t. The thing is with most drugs I feel alienated, weird… I twitch, I get nightmares, I get lethargy, restlessness, anxiety, and sometimes I even have suicidal thoughts that unfortunately led me to the emergency room more than once.
She said the new drug- Abilify– could help regulate my mood. The idea is to take it at 5mg – a super low dose – to keep my curves from skyrocketing or dropping at the speed of light. Sounds good yes. I would have to wait a few months to monitor the effect of Abilify on my mood and on my menstrual cycle.
Will it work? We have a fifty percent chance it does. Ok, side effects? For starters, it is prescribed to children. How bad could it be?
Then Surprise surprise, they said when they put it in the market that it does not make you gain weight. Oups! Mistake, she said it does in many patients and my readings confirmed a nice 10 to 20 kilograms of extra weight per year. Maybe at different dosages, but still. I won’t be able to tie my own shoelaces by 2020.
Ok. What else? Oh it varies greatly she said from one person to another. Reading suggests that the worst is in the beginning; like vomiting and the like. That does not scare me. What really scared me is that patients on this drug would complain of very low energy and of restlessness or need to move.
According to the official site of the drug,
“ABILIFY may cause movements that you cannot control in your face, tongue, or other body parts. Tardive dyskinesia may not go away, even if you stop receiving ABILIFY. Tardive dyskinesia may also start after you stop receiving ABILIFY.”
They might get also compulsive behaviors such as gambling and binge eating, cholesterol and anxiety.
How are you supposed to fight depression with all this extra weight and without any energy, with twitches and compulsive behavior? Don’t tell me stop searching the Internet. I did differ from a wide spectrum of side effects before. They are as real as it gets.
Her idea is that my Prozac would have a counter the side effects of Abilify and things would balance out. Perhaps…
So my dilemma is simply the following:
Should I risk living with these unpredictable cycles and watch myself and my family losing our minds slowly; or should I take the drugs and lose myself little by little and become a deaf note floating around in a soundless world?
Can you relate? Did you go through the same? Can you throw me a bone here? What did you do? What would you do?
God, grant me the serenity to accept the things I cannot change, Courage to change the things I can, And wisdom to know the difference.
I want to take a pair of scissors and chop my hair off
I want to break both legs
I want to cut my face with a knife
I want to slice my wrists and watch blood oozing out of my veins
I want to live on the street
I want to never speak again
I want to never feel again
I want to never see again or hear again
I took the drugs today. Don’t know why or how many… probably lithium 250*3, Prozac 20*3 and a couple Temesta 1.
I had gotten so angry before it. Not mad angry but scary angry; where nothing matters anymore. I have been there and it is not pretty. I am getting numb now. Getting slower. My nerve endings are not painful anymore. My upper back has stopped wanting to detach itself from the rest of my body. I am mellow. I am high and low and I will hit the ground faster than I know it.
I couldn’t succumb to what I wanted to do. Is this safer? No. Is this what I want? No. Did I lose yet another month or two trying to be a good girl responsible for her body and mind? Yes. Do I gain points in this game or does my score go back to zero each time? What now? A life of broken promises and misery all around to which am the catalyst always. If I could just be on an island free to live or not as I please. Would it change anything?
The worst feelings I have are about those around me. The destruction I create in their eyes. I don’t want to talk to them or look at them. I don’t want them to see me. I should be locked up alone like a crazy relative in the attic. In a bare room with a small window. I wouldn’t be let out because I lost my confidence and words remain words. What is a promise? Why is it so important?
I want to see my children grow from far away. No need to get them messed up with me. I will tarnish their childhood with worry, fear, and dread. Their small hands come to me to cuddle and my skin burns. Their kisses burn my face. I know I shouldn’t have been their mother. It burns and I feel I am contagious. What did they do to get me? How could I have predicted my state now 10 years ago? I love them too much to hurt them. I hurt them just by being a mass in a bed that moves right to left all day. I hurt them when they cannot play because Mama is in pain. They cannot go out band cause Mama is having a bad day. They cannot have friends over because Mama needs silence. They know I am sick and they ask me what hurts. They bring me dolipran and ask me if I want coffee. They tuck me in. The small one tucks me in ans shuts the door behind him… How long will I be able to lie?
I want to get my father only on the phone. I don’t think I can even handle this. I don’t want him to see me a bag of bones. I am his life and that is the problem. What kind of life is that? Tormenting my old man is what I do.
My husband, I don’t know what I want for him. I want him to go on and not stop because of his handicapped wife who should be locked in the attic. I want him to forget me and that is the toughest of all. I want him to forget 19 years of mostly joy and a year of mostly hell. I want to erase his memory of me and maybe remove all love and pity from his heart. If he forgets whom I was before maybe he will let go easier…
I want him to stop believing it will pass. I want him to stop hoping it will not be like this tomorrow. There is no more older me, a me of those were the days: she is gone. He says: She is getting used to new drugs, she reached the therapeutic level of the drug to work, she is having side effects from the drugs, she is in withdrawal, she is …. she is…she is done habibi that is what she is. The one you loved dearly is not me and I am not her. All what we had has been taken away with my illness. We got robbed 20 years and only you have at least a couple more 20 years to live. Don’t live in hell.
I want it to stop being about me.
Is this too much to ask? I want him to go to work. I want him to travel for work. I want him to do his job as he should. I want him to have friends and hobbies. I want him to have fun. He cannot with me around. How can I disappear? I want him to plan his life like anyone should be. I want him to stop walking on eggshells all the time. I want him to stop detonating my bombs right and left… I want him to live and embody life for our children. He can do it.
The nausea is kicking in now. My body is very heavy. I have a few hundred steps to take back home. It is sunny. I had coffee. People are in summer dresses. The street is buzzing. Kids in strollers and people on bikes. Motos ans buses make the most noise and it is annoying. The world is not stopping…
Dear all, thank you for checking in. It has been over a month now that I have quit all psychotropic drugs.
I hate putting pictures of myself online. I need to do this. Here is me: one in ER while on a cocktail of drugs and one DRUG-FREE on a night out (with my husband cropped out of the selfie for his privacy)…
They scare you…
This is a rather long entry. I will be telling you about how the experience has been. I will also tell you at the end my two cents on my last psychiatric appointment. I will also refer to what I do to be able to manage my withdrawal after almost a couple of year on heavy drugs.
They sacre you…
Ever since this experiment spectrum of emotions, thoughts and physical sensations have been revealed to me ever since.
I am partially proud and relieved. I have this sensation of being in charge of who I am and once again responsible for my decisions and thoughts.
It is not an easy journey. A layer of artificial pain has been lifted away quite dramatically from my being. I discovered the traces of other pain beneath. It was thrilling to regain emotional and bodily sensations again. It is spectacular to be human and mostly to feel like one.
I find myself unable/unwilling to think or plan ahead. I try to live a minute at a time and not to complicate anything. Although I can achieve a wider range of feeling, I prefer to dwell on the surface.
They scare you…
I am prudent. I once read that bipolar patients are always waking on eggshells. I think it is also true for those who suffer from recurrent depression. I worry about the consequences of my feelings and try now to stay at the surface. I think that this is more than anything, a survival mechanism.
Bad dreams have been happening. They are too vivid for my liking. They are probably the most vivid I have had to memory. Why are they so scary? Because they are not based on fantasy. They surprise me as logical, and this is why all the while during the nightmares I think that I am actually loving those moments.
Tears are close by. Menial tasks requiring mental skills are tough for me. I need to concentrate with all my mind. Adios to multitasking. One thing at a time.
My weight is soaring. As big as a whale; as if I have eaten every problem I have ever thought about.
Together with my limited mental capacity, I feel short of who I am.
They scare you…
My 38th birthday is around the corner. I am worried about the forties, worried of turning 41 – the age at which my mother died.
I think of her a lot lately, with more understanding. Though my turmoil was partially due to my childhood with her and to her sudden death, my illness has taught me to see our relationship differently.
I understand her now more than ever. I feel for her suffering and instability. I cherish her ability to have taken care of me to her best; with her limited means. I don’t blame her anymore. I couldn’t have done better myself.
I hope for the years to come to be able to see my illness as tough-love; as a blessing in disguise.
They scare you…
A disturbing fact though remains.
I had gone to my latest appointment with my psychiatrist 10 days after quitting. She was of course against it. She said quitting suddenly has severe consequences. Depression of course was a runner up. I was also told that lithium won’t probably work again should I need it. Rebound is possible, no one knows when, how or for how long. It would be very dark I was warned.
Perhaps I could live with all that. Nothing she said was new until she told me something quite harsh.
They scare you…
Knowing that I write about mental illness, she told me that I should put a warning when speaking about going cold turkey. She said: ” Mothers who kill their children and then commit suicide do that because of depression”.
They scare you…
She left the sentence hanging in mid air; either to refer to potential readers who can harm themselves by listening to me. She could have also meant me; I was left to choose.
Besides being deeply offended and utterly shocked, I felt a lot of self doubt that I now regret. I dwell on this almost daily.
I say with utmost confidence – something I generally strongly lack – They scare you…
Bullshit; No one can pretend to know you better than yourself.
Bullshit; Stop stigmatizing mental health patients; you of all people should know how to weigh your words.
Bullshit; No! Our loved ones; for that fact my children are a red line that no one is allowed to cross.
Bullshit; no! Crying, anxiety attacks, binge eating/ drinking, nightmares, dark thoughts, are and were never ever directed to anyone else.
BULLSHIT!!! STOP!! I will not let your narrow single sided knowledge of an incredibly complex topic such as the human mind dictate how I should live my life.
I tell you my dear reader. I warn you like she asked me to do not to quit cold turkey. But I add to that; this road is not to be travelled unless under certain circumstances that are very complex.
You and you alone can decide how to live and what to do with your life. You alone will know when or when not to quit. You alone know down deep inside your motives for such a decision. And most important of all, you alone know if you are god forbid dangerous to yourself or worse to others.
Whatever you do, do not quit believing in yourself medication-free. Yet better, do not quit the hope for one second of being illness-free.
Without any conspiracy theories, let us not have the world of pharmaceutical companies tell us how to live or love our children!!
I do not deny that yes unfortunately such miseries do happen. Yet, millions of millions live and die without committing any of such acts and hopefully you and I are no different.
Should you decide to cut off or quit. I urge you besides doing it at the right time and weighing the benefits and the doubts as well as the consequences, TAKE SUPPLEMENTS.
I have a routine filled with micronutrients, vitamin D, omega 3, probiotics, and amino acids. I also use essential oils for withdrawal pains such as headache, back ache and insomnia. They help me a lot. All this is due to my dear husband. He has done incredible research on the topic and I do take all my supplements religiously. On most nights I sleep, and on most days I go out of the house.
Please I’d urge and beg you, if you are reading this before you go to your first doctor’s appointment because you are suffering, considering an alternative route. Do your own research, ask a loved one to do it for you. Just don’t start with antidepressants, mood regulators and benzodiazepines. You might just need iron and vitamin B complex instead. So take charge and do your homework. There is an alternative route – less travelled nowadays yes but real all the same.
No one will care when you have a zillion side effect but you.
I will be writing another follow up to let you know how things are progressing. Feel free to comment or ask questions…
I have to document what I am going through. It is equally possible that I have done the boldest or the stupidest decision. I quit three medications cold turkey. Prozac 20 mg, lithium 600 mg and Temesta 1 mg.
I did this without the knowledge of my psychiatrist; I even postponed my appointment with her not to get influenced.
I know what science says. Don’t quit cold turkey whatever you do. I know. Not to brag, but I quit before for other reasons, other drugs that were extremely addictive and I survived. Yes I almost died, but it was totally worth it.
Question now is how long will this honeymoon phase last before withdrawal kicks in? What is the difference between withdrawal and the side effects that I am going through? The big question is, why should I keep on taking drugs that do not alleviate my pain and give me a bundle of other things to suffer from? The question is, when do you say enough? When do I say I know my body and I know how it functions best?
Illusion or reality. What am I expecting now? A miracle? No, I so do not believe in those. I am just humbly aiming to get back to my initial problems; to my initial depression before psychiatry got involved.
I am a good patient. I am quite reasonable. Yet, and I repeat, why take drugs that make me sick?
I refused to draw a comparison between cancer and mental illnesses because I thought they were very distinct. I was wrong. I thought more research went into cancer: true. I thought cancer is a more pressing predicament. Yet, cancer patients sometimes reject treatment. Families of deceased cancer patients often swear the medication is the reason behind the death of their loved ones and not the illness. Patients who go through one cycle of treatment and sometimes do not accept another one. Yes, they would rather die; or live?
This leads me to my main two points here. One as a patient I have a choice. Two, quality of life is more important than life. Why else would euthanasia be legalized?
All I know is that part of my remaining brain is telling me I have to listen to myself. I prefer my own illness to that one artificially induced and resulting in neurological and neuro-chemical imbalances in my body.
I simply want to know why I am crying when I do. I want to stop twitching. I want to look in the mirror and see me; the fat or the ugly. It will be me and not some alien inhabiting my body and taking random decisions on my behalf.
Risk is part of life. We all make equally good and bad decisions. Only time will tell. The worse that could happen is returning to the status quo. At least then I would know my human limitations and will stop complaining. Wouldn’t you try if you were me?
A cycle. A few good days. No warning. Dreadfully bad ones to follow. Endless hours spent sleeping. A few many tears of what was and what has become. A glimpse of reality through the eyes of those around me. A warning. This must end.
If nothing is better so why keep trying the same old? A revelation against the common wisdom or foolishness of the others. I will stop the drugs. No way back. If I am to suffer let it all be mine. I don’t want no more appointments, no more needles, no more a pill before or after. No more shakes. No more tears of fear. No more pity.
The worse has been seen. Nothing can top it up. What is it am trying to numb? It is not gone. I feel my pain as much as an amputee feels her gone leg. Let me be me. Let me look in the mirror and despite of what I will see, I would at least claim it to be mine.
Let me sleep it through and when it is over, maybe life will resume…
I want to be readmitted to the hospital, but there is no place for me today. Maybe there will not be either till Monday. That means I have to keep my will to go for hospitalization alive till then. That means I have to give my family and specifically my babies the cold shoulder. Otherwise, I will change my mind again.
I know no one else understands the cyclical problem I am facing. Today is the last day before the weekend. This means today is the last day before total meltdown. I want to be safe before it. For others all days are the same. The dread of the weekend is creeping up on me like a thousand ants…
Will I have the will to go after the weekend? What will happen? I keep my drugs with my father. I will not go out alone. I do not even want to go out. I have to wait and waiting is what I hate the most about this whole process. If I could manage to sleep it through…
We have to wait for doctors’ appointments, for drugs to kick in, for drugs to taper off, for places in hospitals, for visits at the clinic, for permissions to go out, for the right moment to leave the kids when on perm, for the nurse to give you the pills, for the lunch tray, then dinner tray, for healing to occur, for convalescence to endure….
We have to wait to kiss our children goodbye, we have to wait to greet our children… We have to wait to explain over and over again what is wrong with us.
To hell with this waiting, yet we even have to wait for hell..